jual kayu murah menerima order bahan
Showing posts with label survivorship. Show all posts
Showing posts with label survivorship. Show all posts

Paying it Forward

After a cancer diagnosis, many survivors and their loved ones are motivated to give back some of the good fortune or good experiences they had on their cancer journey.

Philanthropy helps fuel research and patient care programs that provide hope to patients and families for the best possible outcomes – you can make a gift to help accelerate these efforts.

However, writing a check isn’t the only way to “give back” to others in the cancer community.

In this blog, Carolyn Vachani, RN, MSN, discusses ways in which you can give a little of yourself to the cancer community and “pay it forward” to other cancer survivors.

Have you “given back” to other survivors? What inspires you to share with others?

Read more about Carolyn’s advice for “giving back” here.

For 6 Weeks, I Had Cancer

Melanie Gaffney is a proud childhood cancer survivor, and a contributor to the Focus On Cancer blog. Today she is cancer-free, but lives with the after effects of her cancer treatments. 

As a cancer survivor, relapse and second cancers are always in the back of your mind. The thought of cancer coming back doesn’t rear its ugly head daily, but sometimes the idea of getting cancer again can stop you dead in your tracks.

I have been cancer free for a very long time. I’ve had a couple of scares, but have always come out on top. Just this past January, during a routine cardiology visit, my incredible physician, Dr. Joseph Carver, discovered a lump on my thyroid. It wasn’t visible to the eye on the outside, but it was there, just under the skin.

I sat there at the end of my exam and stared, listening to him tell me about this lump, and all I could hear was “cancer, cancer, cancer.” As he spoke, all I could think was: “How will I prepare my kids? How will I afford childcare during treatments? Will my 5-year-old son be scared and understand? Will I lose my hair?”

Dr. Carver’s words would penetrate my thoughts every now and then, but for the most part he was just a blur.

Learn more about the Abramson Cancer Center's Living Well After Childhood Cancer program.
Once I mentally came back to the room, I sat and listened. He told me: “Melanie, people find lumps and nodules on their thyroids all the time, and they turn out to be nothing. But, with your personal history, your chances of having cancer again are higher than average.”

He told me I’d need a biopsy, and as he discussed the next steps, I listened intently to every word. I knew that I had to do everything just right to make sure that if it was in fact cancer, I had the knowledge I needed to take care of myself and those around me.

After my appointment it was time to start to make the calls to my family to tell them what was going on. They weren’t easy calls to make - even though I only knew it was a lump –we all knew my chances of what it could be.

Because of my scheduling preferences, my appointment for a biopsy wasn’t for six weeks. I can honestly say, without hesitation, that they were the longest six weeks of my adult life. I went through the motions, work, home, kids, etc. without always focusing on it, but I would break down in tears every day, every single day.
For those six weeks I had cancer, or, I might as well have.

I have incredible people in my life, that change their plans to accommodate my appointments, who are there for me as soon as a I need them, who blindly support me and my family. My friends actually organized a dinner during those six weeks, to just celebrate our friendships and lives together. At that point, I knew that if I did have cancer again, I was going to be just fine regardless of the outcome.

The day came for my biopsy, I was ready; emotional but not scared, strong but humble. I was ready for whatever the results were going to be.

I got my results: 100 percent benign.

I had cancer for six weeks – in my head and in my soul and in my heart, I had cancer. But now, knowing I don’t, I am ready for whatever else being a survivor may throw at me.

I have a feeling this may be just the beginning, that more scares will come and there may be a time where I am not as lucky with the outcome, but until then….
I don’t have cancer.

Nutrition for Breast Cancer Survivorship (Video)

June 3 is the National Cancer Survivorship Day - a day on which cancer survivors celebrate life after a cancer diagnosis. Healthy eating after cancer treatment is important for weight control and nutrition.

This video from the Joan Karnell Cancer Center takes a look at nutrition and survivorship after treatment for breast cancer is complete.













A Patient Story: The End of Cancer Treatment and Penn Proton Therapy

Tracy Lautenbach, MSW, LCSW, OSW, is the social work team leader for radiation oncology at Penn. In this article, she discusses what happens when cancer treatment ends.

The time of diagnosis is often a time of shock or described as feeling you’re having an “out of body experience." During treatment you may feel you will never get through it and are often plugging along through the thick of it. Then comes the end of treatment where one can often feel a sense of overall abandonment.

Cancer treatment may have come to an end however the cancer “experience” has not. It is not over. For many patients this is the time there is a resurgence of fear.

You have recuperated and now the recovery stage begins.

Patients are left to pick up the pieces of their lives.

Being around people who listen and validate your fears and not dismiss your fears is the essence of the support that is needed at this time.

In this recent post on her blog, Chemo in Louboutins, by cancer survivor Susan Schwartz, she writes about what it’s like to complete cancer treatment. And the feelings that come with ending this chapter in her life.

No Excuses Now

Susan Schwartz
I don’t know why I am finding this last posting so hard to write. It should be easy. I’m done treatment. The End.

Penn proton therapy came and went without chemo or Louboutins, so I feel kind of like a fraud writing about it. Every day I got up super early, threw on black leggings and white sneakers and went to my session. I did walk back from treatment to my parent’s apartment (almost 2 miles)…still that was no excuse for ugly footware. Mr. Louboutin designs sneakers –of which, sadly, I have none. It would have been RadiationInNewBalance.com.

New Year’s is usually thought of as a time to start anew (thus, the NEW in New Year’s) with projects and plans and resolutions. I just want to go back to April 2012 – home from holiday, kissed by the southwest sun of Arizona and the Grand Canyon, ready to go back to work. A time when I was clueless about what was to come.

I return to London this next week to begin the process of “getting back to normal. This involves trying to convince myself that I look like a middle-aged Jean Seberg and the weight I gained will slough off. After 4 weeks, radiation has only left me with a slight sore throat and some “sun” burned skin around my chest.

“All this will be healed soon,” promised my doctors.

Did wearing Louboutins make me feel and look glamorous? Yes, it did. Am I still filled with fear even now that I am going home? Yes and I am certain I will always feel that way.

Still there is one thing I can guarantee – no more dust covered Louboutins waiting for an invitation to be worn.

The Best of the Goods:

There are some people and things that deserve special recognition:
The SLS Support Team

I could not have gone through this and come out the other side without all of you…the parents, boyfriend, friends, those who read and commented on this blog
The SLS Medical Team
Everyone at HUP (Hospital of U of Penn), especially the chemo nurses, proton 4 ladies, and the doctors who are trying to cure me and their teams.
Steve Jobs and Skype
Without Facetime, Skype and every other software and/or device that let me keep one foot in the UK – allowing me to speak to my friends and watch Strictly Come Dancing at the same time!
Your Prayers, Hopes and Well-Wishes
These I pass along to the people I met at the Proton Center…who are still going through treatment.

For those of you who do not know me personally and have questions about how I am and what I am doing – you can always check out Best Bits Worldwide.

Learn more about Penn Proton Therapy.

Survivor Strong: Celebrate Cancer Survivor’s Day With These Inspirational Stories

Cancer Survivor’s Day was this month - a day to celebrate life with and after cancer. Every person diagnosed with cancer is considered a survivor, and we thought it would be inspirational to share some stories of Penn’s Abramson Cancer Center survivors.

“Thank you for saving my life.”

Susan Bolinger of Elverson, PA, had a nagging sore throat that wouldn’t go away. After a tonsillectomy revealed she had tonsil cancer, she had a tonsil dissection, and Trans-Oral Robotic Surgery (TORS), a revolutionary surgery for the head and neck developed by Drs. Bert O’Malley and Gregory Weinstein at Penn Medicine.

Susan writes,” Today, I am cancer-free. Things are going well, and I feel better and stronger every day.”

Read more about Susan’s story here.

“Being diagnosed with stage IV cancer was not what I was expecting at the age of 30.”

From L-R: Lori Cuffari, Dr. Marcia Brose,Michelle LeBeau,
At 30, Michelle LeBeau was diagnosed with advanced stage medullary thyroid carcinoma. Michelle sought treatment under the care of Marcia Brose, MD, at the Abramson Cancer Center. There is no known cure for medullary thyroid cancer and it is not responsive to traditional chemotherapy, but rather than sit back and do nothing, Michelle started the REACT Thyroid Foundation in 2011.

Michelle says: “I was very determined to not let cancer define who I am but rather let it be one more interesting part of me. I have been very successful at doing that and have become so much more of a well rounded person because of it. My diagnosis helped me to realize how important it was to have a work/life balance, not sweat the small stuff and to live life to the fullest.”

Read more about Michelle here.

“It was the coming together of many professionals and friends that made it a comfortable, very easy experience for me.”

Bill Barbour of New York, is an avid cyclist who was diagnosed with prostate cancer in May, 2011. Always active, he wasn’t ready to let treatment for prostate cancer slow down his life, or his participation in his favorite activity, cycling. Bill chose to have proton therapy for prostate cancer at Penn’s Roberts Proton Therapy Center in February, 2012, and today he is cancer-free.

Bill remembers, "Proton treatment at the Roberts Proton Therapy Center within the Perelman Center for Advanced Medicine in Philadelphia could not have worked out any better for me.”

Read more about Bill’s story here.